HamerJammer Posted December 12, 2011 Author Posted December 12, 2011 Hang Tough. Vent with us if you need to but I gotta be honest, I'm glad Smellovision isn't here yet. The bag will get easier to manage. Are you getting any visiting nurse help? If not ask your doctor's ostomy nurse to help you with any dietary changes you might wanna make with it. Low gas producing foods will serve you better. LOL..... Smellovision would be bad, Not a reality show I would want to subject anybody too. Actually, I have a "Care Partners" nurse coming here Tues. to show me products and teach me how to change it.
cspot Posted December 12, 2011 Posted December 12, 2011 Your sense of humor leads me to believe your a fighter! Stay positive man!
Quietly Posted December 12, 2011 Posted December 12, 2011 Any news Jeff? Just hope things are progressing in a positive way for you. Best, Gerry Hey Gerry! I was released today, I've just been staring at this Bag and Stoma.... I just still can't believe it..... I'll find out the coming weeks what the next steps will be. I was told by a nurse that it will be about 6 to 8 months of being built up and knocked back down over and over with Surgery and Chemo treatments. You wouldn't believe the darn smell this Colostomy produces?!? It's not, what you call the usual "gas" you normally deal with....Plus. extra steps you have to take care of it! .......Its a brave new world.... I just posted a Hamer Chaparral to sell everybody, Please check it out on the first page!!! Well Jeff you are on the road to recovery and I admire the way you are taking all this and maintaining a sense of humour. Don't swing the bag about too much Good luck with sales. Kind regards, Gerry
JustKid Posted December 12, 2011 Posted December 12, 2011 Positive vibes going your way , man.I visit gastroenterology office frequently ( work related ) and meet a lot of PT's after the surgery. Some of them with colostomy. I can't even tell which one of them has it. Some have it 6-12 months , go back to OR after and doing good. My friend ( girl) had one hanging for 10 month. The smell will go away, once you get a hang of it. I promise you , nobody will ever know, see or smell it.My father ( 82) was diagnosed with colon C and was operated in May. The surgeon was a miracle maker and no colostomy was needed. On the road to recovery now and is doing good. Interesting mind game - we never told him he had C, just told him that it's a big errosion and it has to be operated on ( knowing medical terminology you can trick old people for their own good). Nobody ever dropped a word to him, not the doctors ( and he's seen a few) not the nurses, it was pretty hard to control all of them. He still doesnt know and is always in a good mood, running around, driving his car and playing chess. The hardest part for him was change in his diet. YOu know how old timers are. So most of it is in the head. I'm sure if he knew that he had C it would be much harder and who knows how it would end. Do not loose control of you mind, always stay positive, you're gonna be fine. I know it's easy to say ( not for me , believe me), but you can do it. You can beat this bastard, man.
Case Posted December 12, 2011 Posted December 12, 2011 Hello,so sorry to hear about your struggles. My uncle was diagnosed with very advanced colon cancer, beat it, and has been cancer-free for more than 5 years now. Can I see your detailed pics of the Hamer Chap if it is still available?Thanks,Case
HamerJammer Posted December 13, 2011 Author Posted December 13, 2011 Hello,so sorry to hear about your struggles. My uncle was diagnosed with very advanced colon cancer, beat it, and has been cancer-free for more than 5 years now.Can I see your detailed pics of the Hamer Chap if it is still available?Thanks,CaseHey Case! I'm hoping like so many others similar success stories that others have posted, That'll I'll be able to tell mine!Send me a e-mail to [email protected] and I'll send you some pics!
Navigator Posted December 13, 2011 Posted December 13, 2011 Hey Jammer,Just wanted to add my voice and wish you good vibes and wellness. An older friend of mine was diagnosed with colon cancer about seven years ago (at the age of 68). She's been cancer-free for the last six years. Sounds like you've got good care happening, but I thought I'd give you the link to the docs who treated her (more of a holistic/natural approach she took) in case you're ever looking for other resources: http://linchitzwellness.com/.I've got to say that the comment about humor and comedy helping is a great idea. There's a book "Anatomy of an Illness" that chronicles the author's use of comedy tapes to get through a life-threatening illness. Laughter, it seems, literally does a body good.Sounds like you've got a great attitude and a loving family to help you out. Thanks for sharing with the forum. I don't know a lot of the folks here personally, but there's a lot of great folks on here cheering you on. Wishing you all the best.Bill
BubbaVO Posted December 13, 2011 Posted December 13, 2011 Positive vibes and prayers out to you. Hopefully, you'll get assigned a hot care giver to give you sponge baths. : )
Pierre07 Posted December 13, 2011 Posted December 13, 2011 Im praying for your total healing man, God bless!
HamerJammer Posted December 14, 2011 Author Posted December 14, 2011 Hey Jammer, Just wanted to add my voice and wish you good vibes and wellness. An older friend of mine was diagnosed with colon cancer about seven years ago (at the age of 68). She's been cancer-free for the last six years. Sounds like you've got good care happening, but I thought I'd give you the link to the docs who treated her (more of a holistic/natural approach she took) in case you're ever looking for other resources: http://linchitzwellness.com/. I've got to say that the comment about humor and comedy helping is a great idea. There's a book "Anatomy of an Illness" that chronicles the author's use of comedy tapes to get through a life-threatening illness. Laughter, it seems, literally does a body good. Sounds like you've got a great attitude and a loving family to help you out. Thanks for sharing with the forum. I don't know a lot of the folks here personally, but there's a lot of great folks on here cheering you on. Wishing you all the best. Bill Thanks Bill! That's some good advice and I'll checkout the link. I've been hearing all kinda of holistic, certain foods, and medicines that are out their to combat cancer. I'm finding plenty to read! The support of the incredible people on this forum has been nothing short of inspiring, you guys are helping keep my head-up!!! Positive vibes and prayers out to you. Hopefully, you'll get assigned a hot care giver to give you sponge baths. : ) LOL!!! To bad I don't have the option to pick one! "Excuse me nurse can I have a glass of wine?" "Get a glass for yourself while your at it... and....ahh also you missed a spot! " Im praying for your total healing man, God bless! THANK YOU, Pierre07! God bless your family this Holiday Season!!!
burningyen Posted December 14, 2011 Posted December 14, 2011 Whenever I see the word "holistic" I run for the hills.
HamerJammer Posted December 23, 2011 Author Posted December 23, 2011 Hey guys! As you can expect, I've been in the throws of doctor appointments and Holiday hecticness..... I found out that I have to have a full rectum removal,So my new Stoma will be staying for the long haul...... I'm leaving town for the Holidays and I wanted to thank everyone here for the support you have shown me and its been very humbling! God Bless and MERRY CHRISTMAS!!!!!!! After I get back, I'll be posting more gear for the New Year! :angry:
coolfeel Posted December 23, 2011 Posted December 23, 2011 Continue to stay positive man... I hope you have a nice holiday!
Rodan Posted December 24, 2011 Posted December 24, 2011 Merry Christmas, yourself! Take care and have a relaxing time with your familiars. All strength and good wishes through the season and through your entire recovery.God bless, if you don't mind.
HoboMan Posted December 24, 2011 Posted December 24, 2011 Hey guys! As you can expect, I've been in the throws of doctor appointments and Holiday hecticness..... I found out that I have to have a full rectum removal,So my new Stoma will be staying for the long haul...... I'm leaving town for the Holidays and I wanted to thank everyone here for the support you have shown me and its been very humbling! God Bless and MERRY CHRISTMAS!!!!!!! After I get back, I'll be posting more gear for the New Year! :angry: HammerJammer, wishing you the best. You are an inspiration to us all. Your strength, courage & positive attitude is something we could all learn from. Getting upset because the Dollar Store is out of wrapping paper seem so trivial & ridiculous right now. I am takking the time today to conact some people & tell them how much they mean to me and how important they are in my life. I would like to take this opportunity to personally thank you.
tractorj0hn Posted December 24, 2011 Posted December 24, 2011 HammerJammer,Keep your spirit up! Hope you have a great holiday spending time with friends and family, in-laws, outlaws, and such. Here's to a quick procedure and speedy recovery for a healthy New Year. Cheers!
dobieboy Posted December 25, 2011 Posted December 25, 2011 Thinking of you today... I'll keep you in my thoughts
blackfbiv Posted January 6, 2012 Posted January 6, 2012 [You wouldn't believe the darn smell this Colostomy produces?!? It's not, what you call the usual "gas" you normally deal with....Plus. extra steps you have to take care of it! .......Its a brave new world....I would!! Family friends used to invite us over for Sunday dinners when I was a kid. The Grandfather had a colostomy bag and all that.Invariably the old duffer would do a change out/empty or whatever about 10 minutes before dinner. Pretty heavy trip for the rest of us. They had a big Dobie that would get a whiff and run off to hide... Ah, whattaya do, hey? Keep on keeping on my friend...
HamerJammer Posted January 8, 2012 Author Posted January 8, 2012 How are you doing my friend?I'm trying to keep on truckin, But have had a few rounds of Chemo and that stuff likes to zap your energy.... Also, a side effect is that I will have a strong sensitivity to cold mainly with my hands and feet?!?! If I handle something cold for to long I can have permanent nerve damage. So simple things like holding a cold drink or getting a frozen dinner can be a risk now? Weird stuff, I can only imagine what they put in it? I'm just laying low and resting up for the next round. Did you have a good Holiday?
HamerJammer Posted January 8, 2012 Author Posted January 8, 2012 [You wouldn't believe the darn smell this Colostomy produces?!? It's not, what you call the usual "gas" you normally deal with....Plus. extra steps you have to take care of it! .......Its a brave new world.... I would!! Family friends used to invite us over for Sunday dinners when I was a kid. The Grandfather had a colostomy bag and all that. Invariably the old duffer would do a change out/empty or whatever about 10 minutes before dinner. Pretty heavy trip for the rest of us. They had a big Dobie that would get a whiff and run off to hide... Ah, whattaya do, hey? Keep on keeping on my friend... That's funny stuff! Maybe I can use this to my advantage? If anybody wants to pick on me, I can take off the bag and say "Get a whiff of this!"
Bobby Marshall Posted January 8, 2012 Posted January 8, 2012 Chemo is nasty. My family member did chemo and radiation simultaneously.Get some thin gloves for around the house. Steering wheels can be pretty cold depending on your climate so if that applies to you, make sure to wear gloves when driving.Take care of yourself.All the best.
a.bandini Posted January 8, 2012 Posted January 8, 2012 Hang tough, HJ! We are all pulling for you, and wish you the best!
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